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Wednesday, August 30, 2017

Not missing, just misplaced

Just wanted to share this. My son went missing in the house. Since he doesn't always respond to us calling him, it can sometimes be stressful. Since we know he can't get out without an alarm going off or growing another 4 feet to unlock security padlocks, I knew he was somewhere inside house. So really, he was misplaced more then missing. This is what happens when I lost him and here is the strange place where I found him.



Had I only started looking in the places I would least expect to find him, it would have saved me some time.
Once I did find him, he just ignored me and kept on moving on. It was just one of those silent days for him I guess. If he can fit here, I am thinking he may have a career in Cirque du Soleil.

Honestly, I think I will put a cow bell on him. At least when he is hiding I can still hear him. To bad we can't microchip our kids...yet 😜.

With Love and dedication, anything is possible!


Solar Eclipse

The total solar Eclipse was spectacular. Being able to watch it with my children only made that more amazing. I'm so glad the kids got to see it, despite the difficulty of waiting to see it, the constant running away and the worry that someone would damage their eyes by attempting to watch. So it was 75 percent awesome and 25 percent crazy town. We laughed when E said "It's night night time." and then shortly after was super confused when he said "But I didn't get to go to bed."

Still turned out to be pretty great day.

Monday, July 10, 2017

Grateful for Angels

Recently, I had to rush E to hospital for ingesting something he shouldn't have. He was literally out of my line of sight for less than a minute. When he got quiet, I knew I needed to go look for him. There he was eating my moms medicine.

It always surprises me how he will eat styrephone or something like that but he won't eat a bite of rice or chicken. He is so extremely picky but not when he really needs to be. Poison control says get to nearest hospital so I went, no hesitation.

My only mistake is having taken them literally, I went to the nearest even though another ten minute drive would leave me at children's hospital. Instead, I stopped at our local hospital. Which is a great hospital, the twins were born there, just not for pediatric emergencies. In any case, I took him and it was nuts.

They brought him in quickly which I was thankful because he was already starting to act up. Then once in, they wrapped him up in a papoose and immediately IV'd him and took blood.  Getting his IV in was rough. It took 5 nurses and myself to hold down this little three year old boy. He is strong but he was now stressed so he was even stronger.  He screamed so hard and so loud that he actually burst a vein on his forehead. I too was scared for him now.

The intake nurse came in and told me a story of her "typical" daughter eating her cats medication for seizures. She told me E would be fine, if her daughter survived that, he would too. This woman who didn't know me from Adam tells me just what I needed to hear. Basically, I'm not a crap mom and all kids will do something at one point or another that leads them right to E's outcome, sitting in a hospital scared. (Angel #1)

E's health was obviously important to me but I was also consumed with worry of the fact that he was terrified. He kept saying to me "Mama, I scared." At one point he collapsed on the gurney, laying perfectly still and said "I dead." I blame is sister E for that, she says the craziest stuff when they pretend play and that is one of them. E still has speech but is limited, we had a hard time determining what and how much he ate. I left my mom at home trying to determine what was ingested but blood work determined that they would simply keep him for observation. The nurses warned me that his behavior would become more agitated and aggressive as meds work their way through his system. At one point, he looked like a fish out of water, flopping and jolting about. Fortunately, "Not the Mama" was there to help me with him and kept rocking him back to sleep when I couldn't. (Angel #2)

A friend of mine here rushed to be with us at hospital but when she realized she couldn't help me there, she went to my home and helped my parents with my kids getting them each off to bed. Staying with my mom until she knew E would be okay and that my kids and my mom were asleep and calm. (Angel #3)

Around two in the morning, the doctor gave us the all clear to go home. E lay asleep when the nurse came in to take his IV off. He was tired, cranky and scared so we were relieved when he had finally fallen asleep. And was seemingly asleep for remainder of the night. We didn't want to wake him only to torture him all over again. The nurse was so calm and easy going about it. As she sat on floor slowly unwrapping his IV bandage to remove IV, she talked to us. She shared with us that she will be careful as possible because she didn't want to agitate him any further. She mentioned she was on the Autism Board and that she understood E's situation very well. Making it a point to let me know that these things happen sometimes, especially with little ones like E. She took care with him and was successful in not waking him. She once again reassured us that he would be okay. Told us what to expect and do in the next 2 days and sent us home. (Angel #4)

Over all, I am grateful to the entire staff that helped us get through this. Glad that E was surrounded by caring people at Lex Hospital. In addition, I am extremely grateful for the angels that walk this earth with us. All of these women helped us tremendously by being non-judgemental and super supportive. I have to believe that God puts people in your path for one reason or another. In this case, he sent me the mom that had been through this, the calming spirit in my life and soother to my boy, my sister, a friend to provide caring support and the head nurse that was educated on Autism more than most.


Helpful information if you ever find yourself in this situation:

American Association of Poison Control

1-800-222-1222 Emergency call line

With Love and dedication, anything is possible!

Thursday, March 30, 2017

Doing my "Business"

Okay moms, we have all been here right? You have to go to the bathroom and do your "business" but who will watch the little kids. When they were babies, you could just leave them in their crib or bouncy. Toddlers, toddlers are a whole different ballgame. The climb, they run and they get into things.

Just when you think they're distracted enough, you hurry to the bathroom, close it, lock it, so you can start your "business" in peace. As you find your calm, there's a sudden knock at the door, a little voice on the other side asking to come in. You quickly respond "NO!" and they seem to go away. You gather yourself so that you can proceed. Two seconds later, you see the door handle jiggling. Ha ha on them, you locked it. Screaming starts. Frustrated they walk away. Now you are fooled into thinking you can have a quiet moment to relax and finish your "business" Or in my case, start.

A another few seconds pass, another jiggle at the door knob, "Dear God he is in!" And this is what happened next…

Doing my "Business"

Seriously, this is my life. I can't even go to the bathroom alone because my son has managed to figure out how to open every single door in the house. Yet somehow, he knows not to ever open the door when daddy is going to the bathroom. Seems I'm just the lucky one. To top that, when they are in the bathroom doing their "business" they kick me out, asking for "Privacy." Can you imagine that, privacy?! They have zero problem violating my bathroom time but here I am giving them privacy.

It's now gotten to the point that I have to schedule my bathroom "business" in the hours between my kids not being home or asleep. I'm sure somewhere there's a doctor who would tell me that that's bad for me. Oh well, that's life or at least that's my life.

With Love and dedication, anything is possible!

Sunday, February 19, 2017

A one sided game of Hide'n Go Seek

With three kids that go to school and two that come home on the bus 10 minutes apart, the afternoon is the most simplified part of my day. After E gets off bus, we walk in for snacks. He and his sister have a snack and watch TV, I stand outside on steps awaiting the second bus to drop off my eldest. As soon as I hear bus at the corner, I walk across street to retrieve my son. For a brief moment, the bus blocks my view of the house directly across the street.

Joyfully I walk in with my eldest son, asking about his day and notice my daughter sitting alone where I had left them. E is not with her. I call out for him, no response. I ask her where is he hiding, she tells me she doesn't know. I don't have a huge house, 1,100 SqF. to be exact all on one level.  Everything either has a lock on it or an alarm to notify us if E is trying to get out.  I figure he is hiding on me. He loves to do that despite my telling him he shouldn't. I keep calling his name as I check rooms and bathrooms. All doors are closed but I open and check anyway. No answer, no E!

Panic begins to build up, I begin screaming for him.  Hoping my yelling will snap him out of whatever daze he may possibly be in. Pleading with him to please come out from hiding.  My other two kids screaming for him as well. I search the rooms and bathrooms again still screaming for him. I run outside now panicked. Perhaps I missed him slip out as the bus blocked my view of the house for about a minute. One of my biggest fears is that he gets out of the house and wanders away. He doesn't respond to his name often or on the regular. I was sick with fear at this point, as I live near a large pond, neighbor with a pool and three blocks from a very busy road.

Quickly, I gather 2/3 of my kids, run back in the house for one last run through thinking of spots I hadn't checked. I check all rooms quickly and this time under beds and in closets. One last door, my closet in my bedroom but that has an outside lock and door is closed. It was quiet.  There he was hidden behind my guitar case. "Surprise!" he shouts.  I fall to my knees in relief and tears. My oldest son, grabs him and says "You scared the jeepers out of me! You are supposed to answer us when we call you." He said what I wanted but was to upset to say at that moment. Seeing me distressed, E grabs my face and says "No mama, No." I imagine he meant for me to stop crying. He had no understanding of what his one sided game of Hide'n Go Seek had just put me through.

The idea of your kid getting out of the house and wandering off is pretty terrifying for any parent. Having a child like E who doesn't always respond to you, that is unaware of danger and can not say his entire name or address is even scarier. I can be in the same room as him and he doesn't acknowledge us right away or at all. All though he is improving in areas, he is not there yet.

"In 2009, 2010, and 2011, accidental drowning accounted for 91% total U.S. deaths reported in children with an ASD ages 14 and younger subsequent to wandering/elopement. More than one third of ASD children who wander/elope are never or rarely able to communicate their name, address, or phone number."
-According to the National Autism  Association


That is why we have alarms and locks on all the doors. If he would have gotten out, it could have been a very bad situation.

Some may say, why don't you take them with you outside? One reason I don't take them out with me is because the bus is literally across from my house. I have a glass screen door that I lock just before I cross to prevent them from getting out but that I can still see them and visa versa.  The other reason is that when I do take the twins with me, as I wait they each want to run off in two different directions. Guess I will be popping them both back in the stroller again and deal with the screaming.

I started to think, what if E had gotten out or away from me? Since I can't microchip my kids, yet, I looked into other options for tracking & safety. First thing I did was sign him up for MedicAlert Found for Autism program  bracelet and shoe strap. It is free. This way if he did run off it would have his immediate contact info for  local law-enforcement, hospital  or who ever finds him can immediately call us or MedicAlert to gather medical and contact information.

Programs recommended by Autism Society for child safety

Autism Society

Take Me Home program - Database program

Smart911 - Law enforcement database for Special Needs

MedicAlert Found for Autism program  - Contact band that can be worn on shoe laces and wrist.


There are watches that you can buy that have a phone connection that allow you to track and even speak to your child. These are great but if your child doesn't like things on their wrist, I don't see how it will last. We are thinking of purchasing one and trying it out on our oldest son. I would love to hear from parents if they have tried this for their child.

Trackers - Here are some that we are thinking of purchasing. Since we are not affiliated with any of these companies we don't have first hand knowledge on how well they function. These are just some chosen by features and ease of use. 

AngelSense - Currently the only tracker designed for special needs children, especially those with Autism.

AmbyGear - This smart watch doesn't just track your child, they can track you as well. And as a bonus, you can set up calendar reminders and alarms to help them stay on task through out the day.

WeenactAlong with safety zone set up, a panic button, and two-way calling capabilities, this device covers all the must-haves that a kid needs to feel safe. It also comes with a long battery life—up to seven days—so you won’t have to worry about the device dying while your kid is away. $75. + monthly service

KigoWatch - $170 + $9 monthly service WORLDWIDE Great for people that travel a great deal. Not sure how well it works in US but really like the concept of this watch.

All that is left is to do is more research, check reviews and purchase one that offers what we need. Though I wish I could test them all out, financially that isn't feasible. If anyone reading this has purchase one of these or another type of GPS tracker for their child(ren), I would love for you to share your experience with it.


With Love and dedication, anything is possible!